​Like many other people with Multiple Hereditary Exostoses, I struggle to manage my day to day pain. Forget about the surgeries for a minute…that’s a whole other post.

​When I was growing up, there wasn't a whole lot of knowledge about the rare bone disorder I had.

​Living with a chronic pain disorder isn’t easy. The simplest of tasks can seem impossible and daunting on a particularly bad pain day, and energy is sparse. You spend so much of it focusing on holding your body in positions that don’t aggravate your sore spots. It’s very easy to fall into huge bouts of depression, because it can be quite debilitating to be in pain more than you are not in pain.