Facts about MHE

• It goes by several different names​​​

  • Multiple Hereditary Exostoses​ (MHE)

  • Hereditary Multiple Exostoses (HME)

  • Multiple Osteochondromas (MO)

• It's a genetic bone disorder

• Benign, cartilage capped tumors (aka exostoses or osteochondromas) grow along growth plates or flat bones

• Several other issues can arise from the exostoses. These include:

  • compression of peripheral nerves or blood vessels​

  • irritation of tendons and muscles resulting in pain and loss of motion

  • skeletal deformity

  • short stature

  • limb length discrepancy

  • chronic pain and fatigue

  • mobility issues

  • early onset arthritis

  • increased risk of developing chondrosarcoma

• People with MHE have a 50% chance of passing this disorder on to their children

• Many people with MHE have multiple surgeries to remove exostoses

• There are only three treatment options currently available

  • surgery

  • physical therapy

  • pain management

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DISCLAIMER: While many find the information and experiences that we share helpful, it is in no way a substitute for professional medical care. Our support network does not engage in the practice of medicine. In all cases, we recommend that you consult your own physician regarding any course of treatment or medicine.

Thank you to Nicole Wynn for designing our logos and contributing her original artwork to our website and our hand-outs.  Nicole is a talented graphic designer who just happens to be living with MHE... you can visit her website at nicolewynn.net

News!

• News from IPSEN about the palovarotene clinical trial in MO

  • Click on the PDF file below to read the press release and update