About Us

Founded in 2000, the MHE Coalition is a 501(c)(3) non-profit dedicated to providing support and information to those living with the rare bone disorder Multiple Hereditary Exostoses.

Our organization uses a multi-faceted approach to achieve our goal of helping to improve quality of life for MHE patients and their families. Support includes:

  • development and distribution of information to patients, families, schools and health care providers

  • assistance in finding qualified doctors and surgeons

  • our website, which provides information for patients, researchers and physicians

  • our Facebook groups, which enable people from all over the world to communicate, ask questions, get answers, give and get support and make friends

  • special programs to help children through this journey, through MHE and Me, the Bumpy Bone Club and We Care

  • the Annual MHE Coalition Gathering held in New York and, most recently, traveling conferences

  • our annual educational grant to provide orthopaedic residents and fellows the opportunity to attend the Annual Baltimore Limb Deformity Course

​© 2015 by MHE Coalition.

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Thank you to Nicole Wynn for designing our logos and contributing her original artwork to our website and our hand-outs.  Nicole is a talented graphic designer who just happens to be living with MHE... you can visit her website at nicolewynn.net

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