Founded in 2000, the MHE Coalition is a 501(c)(3) non-profit dedicated to providing support and information to those living with the rare bone disorder Multiple Hereditary Exostoses.
Our organization uses a multi-faceted approach to achieve our goal of helping to improve quality of life for MHE patients and their families. Support includes:
Our organization uses a multi-faceted approach to achieve our goal of helping to improve quality of life for MHE patients and their families. Support includes:
- development and distribution of information to patients, families, schools, and health care providers
- assistance in finding qualified doctors and surgeons
- our website, which provides information for patients, researchers, and physicians
- our Facebook groups, which enable people from all over the world to communicate, ask questions, get answers, give and get support, and make friends
- special programs to help children navigate this journey, through MHE and Me, the Bumpy Bone Club, and We Care
- the Annual MHE Coalition Gathering held in New York and, most recently, traveling conferences
- our annual educational grant to provide a scholarship for first year college or trade school students with MHE