This page will be an ongoing work in progress.  We hope to add new categories and new listings frequently.  If you have any recommendations for our Resources list, please email us at


Please note that the following are not member organizations of the MHE Coalition.  Links are provided for groups and organizations that may be of interest to our members, but our organization does not endorse any of these groups or organizations,and we are not responsible for the information contained in their pages, websites, etc. As always, we recommend that you consult with your physician regarding treatment options.



International MHE Organizations



MHE for Aussies



MHE and Me Canada


England/United Kingdom

UK HME Support Group



Esostosi Multipla Ereditaria



For Adults:


For Children:

HME-MO Vereniging (jeugd)



MHE prateside




MHE Sverige



MHE FaceBook Pages


MHE Coalition:

Bumpy Bone Club:

MHE and Me:

MHE Family and Friends:




Managing Pain & Fatigue/Chronic Illness


Pediatric Specific


National Jewish Health, nj4kids,

Understanding Children and  Chronic Illness: Protecting your child's emotional health

Pediatric Psychosocial Issues:  Illness Management


Royal Children's Hospital, Melbourne, Australia

Pain, Pain, Go Away: helping children with pain



Having an Open and Honest Conversation with your Healthcare Professional about Pain






Managing School


Elementary School


Middle/High School





Managing Work



Hospitals & Medical Centers


Shriners Hospitals for Children:



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Thank you to Nicole Wynn for designing our logos and contributing her original artwork to our website and our hand-outs.  Nicole is a talented graphic designer who just happens to be living with MHE... you can visit her website at

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