Resources and Links

International MHE Organizations

Please note that the following are not member organizations of the MHE Coalition.  Links are provided for groups and organizations that may be of interest to our members, but our organization does not endorse any of these groups or organizations,and we are not responsible for the information contained in their pages, websites, etc. As always, we recommend that you consult with your physician regarding treatment options.


  • Australia

MHE for Aussies


  • Canada

MHE and Me Canada


  • Netherlands

HME-MO Vereniging (volwassen)


  • Norway

MHE prateside


  • Poland

Wyrośla Chrzęstno Kostne - MHE Polskaśla-Chrzęstno-Kostne-MHE-Polska-315917039340249/

  • Sweden

MHE Sverige



MHE FaceBook Pages


  • MHE Coalition

  • Bumpy Bone Club

  • MHE and Me

  • MHE Family and Friends

Managing Pain & Fatigue/Chronic Illness

  • Understanding Children and  Chronic Illness: Protecting your child's emotional health

National Jewish Health, nj4kids,

  • Pediatric Psychosocial Issues:  Illness Management

National Jewish Health, nj4kids,

  • Pain, Pain, Go Away: helping children with pain

Royal Children's Hospital, Melbourne, Australia

  • U.S. Pain Foundation

Hospitals & Medical Centers

  • Shriners Hospitals for Children

**This page will be an ongoing work in progress.  We hope to add new categories and new listings frequently.  If you have any recommendations for our Resources list, please email us at**


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Thank you to Nicole Wynn for designing our logos and contributing her original artwork to our website and our hand-outs.  Nicole is a talented graphic designer who just happens to be living with MHE... you can visit her website at

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