May 26, 2015

I have the rare genetic mutation of MHE – meaning that nobody in my family, prior to me, has a history of it. This means that my parents went in completely blind. Back then, there wasn’t very much literature available on the subject and the doctors mostly said thing li...

May 19, 2015

We can’t choose a lot of things in life. We don’t get a say in the hand of cards we’re dealt. We don’t get to say “you know what God? I’d rather not have MHE so…yeah”. This is our hand, and what you choose to do with it is entirely up to you. Your attitude is your choi...

May 10, 2015


One of the more aggravating aspects of having a chronic pain disorder, in my humble opinion, is having to explain it to other people. You see, people don’t “get it” right off the hop – especially healthy people, people who don’t have chronic pain disorders. They don’t...

May 8, 2015



My name is J.C. Hannigan. I am a mother, a wife, a sister, a daughter, an author, and a million other things. I wear my many caps and get through each day with sheer determination, stubbornness and a side of sarcasm. Oh, and with words. I am a chronic pain survivor....

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J.C. Hannigan is the official blogger for the MHE Coalition.  J.C. was one of the original Bumpy Bone Club kids, and her blog posts have had a big impact on those with MHE as she describes what it is really like, living with a rare, misunderstood, and often invisible disease. 


J.C. Hannigan is a married mother of two in her mid-twenties and self-proclaimed Chronic Pain Survivor. J.C. is addicted to words, coffee, Instagram selfies, Cadbury Mini Eggs, and Dill Pickle chips (only not together, because that would be gross). She has been blogging for nearly 10 years, and won a Bloggie award some time ago. She writes new adult romance novels and currently has two books published, Collide and Consumed, with many more coming. You can find J.C. pretty much everywhere; except, it would seem…in the laundry room.

​© 2015 by MHE Coalition.

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Thank you to Nicole Wynn for designing our logos and contributing her original artwork to our website and our hand-outs.  Nicole is a talented graphic designer who just happens to be living with MHE... you can visit her website at

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